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    1. Business News
    2. About
    3. rare diseases

    rare diseases

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    Rare disease patients urge PM Modi to address delay in Rs 974 crore national programme roll-out
    Rare disease patients urge PM Modi to address delay in Rs 974 crore national programme roll-out

    According to the open letter, the delay in rolling out the proposed ₹ 974 crore national programme on rare diseases…

    January 30, 2025 08:25 IST
    GST, GST exemption, GST exemption rare disease, Budget 2025, Budget 2025 news, healthcare news, pharma news,
    Gene therapy exempted from GST; duty cuts on critical medicines for cancer and rare diseases expected

    The therapy is a critical treatment option for various life-threatening disease. Earlier, GST on gene therapy was set at 12…

    January 18, 2025 14:21 IST
    Twist partners with MedGenome in India to diagnose rare diseases
    Twist partners with MedGenome in India to diagnose rare diseases

    By definition, each individual disease affects fewer than 200,000 people; however, there are more than 7,000 of these often-debilitating conditions.

    September 26, 2024 17:35 IST
    Rare diseases, rare diseases in India, Sanofi, Sanofi India, sanofi specialty care, healthcare news, pharma news,
    We are moving into newer disease areas; Xenpozyme will be launched in India soon: Anil Raina, GM, Sanofi Specialty Care, India

    The French drugmakers have launched groundbreaking medicines for Gaucher disease, Pompe disease, Fabry disease, mucopolysaccharidosis I (MPS I) and acid…

    May 30, 2024 16:07 IST
    Hemophilia, Hemophilia A, Hemophilia in India, Hemophilia symptoms, Hemophilia side effects, hemophilia treatment, healthcare news,
    ‘I lived my whole life fearing I might bleed to death’: The trials and tribulations of living with Hemophilia

    On average, a Person with Haemophilia A (PwHA) experiences 30-35 bleeds a year. Each bleed is said to reduce 15…

    May 6, 2024 11:55 IST
    Pompe Disease in India | How misdiagnosis, expensive treatment options and poor awareness are affecting patients of this rare disease
    Pompe Disease in India | How poor awareness, misdiagnosis and expensive treatment options are affecting patients of this rare disease

    In India, diagnosing and treating rare diseases presents a multitude of challenges rooted in limited awareness, insufficient diagnostic infrastructure, and…

    February 29, 2024 23:48 IST
    healthcare
    India’s fight against rare diseases needs more focus on awareness and diagnosis: GlobalData

    In the vast population of India, rare diseases are often overlooked, and a silent struggle persists surrounding the diagnosis and…

    December 29, 2023 11:37 IST
    Rare medical cases, brain tumour, cysts, sack of marbles, healthcare news,
    Doctors discover marble-like cysts in Bengaluru woman’s head; here’s what happened next

    According to the doctors, mature cystic teratomas are commonly found in the gonadal tissues and in the head and neck…

    August 2, 2023 14:56 IST
    Crowdfunding, medical crowdfunding, rare diseases, healthcare news,
    Medical crowdfunding has been instrumental in financing various treatments: Piyush Jain Co-founder, Impact Guru

    India faces a significant healthcare financing challenge, with a substantial annual gap of $72 billion due to exorbitant out-of-pocket expenses,…

    July 19, 2023 07:00 IST
    Rare Diseases, Ministry of Health, Ministry of Finance, Rare Diseases Treatment, Custom Duty, Healthcare news,
    Govt gives full exemption to all imported drugs for rare diseases treatment; Industry leaders welcome move

    According to the government, this exemption will result in substantial cost savings and provide much-needed relief to the patients.

    March 30, 2023 11:54 IST
    Rare Disease Day 2023: 'Need to increase access to orphan drugs in India'
    Rare Disease Day 2023: ‘Need to increase access to orphan drugs in India’

    World Rare Disease Day,28 Feb 2023: Some of the rare diseases prevalent in India include Gaucher’s disease, Pompe disease, Fabry…

    February 28, 2023 20:30 IST
    AstraZeneca, AstraZeneca pharma, breast cancer, healthcare news, pharma news,
    AstraZeneca expands its portfolio by bringing rare disease therapy for patients in India

    In a press statement, the company also announced that this rare disease day, AstraZeneca is also joining hands with the…

    February 28, 2023 16:16 IST
    healthcare revolution, health news, pharma news,
    Rare Disease Day 2023: Here are some lesser known illnesses prevalent in India

    World Rare Disease Day 2023: According to health experts, only 5 percent of rare diseases worldwide are treatable.

    February 28, 2023 09:08 IST
    Rare Disease Day 2023,World Rare Disease Day,Rare Disease Day 2023 Theme,Rare Disease Day 28 Feb 2023,Rare Disease Day importance, Rare Disease Day
    Living with Spinal Muscular Atrophy: Navigating the emotional pathway of the condition

    One in every 7,744 live births, or roughly 3,200 Indian infants each year, are found to have SMA in India.

    February 28, 2023 09:00 IST
    Pharmaceuticals, paracetamol, indian pharmaceutical sector, health news, pharma news,
    Small molecule approvals for rare diseases in China reach all-time highs this year: GlobalData

    In 2020 China established the National Rare Diseases Registry System (NRDRS), which aims to unify rare disease registries into one…

    December 16, 2022 12:10 IST
    Rare Disease Day 2023: 'Need to increase access to orphan drugs in India'
    Takeda biopharmaceuticals launches new injectable drug for rare genetic disorder in India

    Hereditary Angioedema (HAE) is a rare genetic condition that causes swelling in different parts of the body like limbs, face,…

    December 14, 2022 11:01 IST
    World Cancer Day,World Cancer Day 2023,World Cancer Day theme, Cancer Day theme 2023,World Cancer Day poster,World Cancer Day quotes,World Cancer quotes,World Cancer Day awareness, Cancer awareness
    Need to include rare disease patients from India in foreign drug development programs

    Typically, the cost of a clinical trial for a new drug for rare disease would be at least $ 200…

    November 17, 2022 12:00 IST
    Rare Diseases, Orphan diseases, Orphan drugs, Ikris Pharma, health news, healthcare news,
    Rare diseases constitute a significant economic burden for any country: Praveen Sikri, CEO, Ikris Pharma Network

    As resources are limited, there is a macroeconomic allocation dilemma due to the opportunity cost of funding rare disease treatment,…

    October 9, 2022 10:00 IST
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    At 100, he’s India’s second most successful artist, with Rs 91 crore turnover: Hurun
    At 100, he’s India’s second most successful artist, with Rs 91 crore turnover: Hurun
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    The Hurun Indian Art List 2025 showcases the top 10 most successful artists in the country, with Aneesh Kapoor taking the lead. 100-year-old Krishen Khanna has made headlines for his impressive work and Rs 91 crore turnover. The list also proves that age is not a barrier to creativity, with artists ranging from 60 to 100 years old. Only two newcomers and one female artist made the cut.

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    • Meet the Top 10 most successful women artists of India, as per Hurun India Art List 2025
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