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  1. Business News
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  3. rare diseases

rare diseases

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Ebola outbreak.
Ebola outbreak: India urges citizens to postpone travel to DRC, Uganda and South Sudan as WHO declares emergency

Ministry of Health and Family Welfare confirmed that India has not reported any case of Ebola disease caused by the…

Updated: May 24, 2026 12:24 IST
University of Kent outbreak
Meningitis outbreak at UK university leaves 2 dead, 11 seriously ill – All about virus, symptoms and advisories

While the specific strain still remain unidentified, the outbreak of a rare form of invasive meningitis has plagued the University…

Updated: March 16, 2026 13:16 IST
Rare disease patients urge PM Modi to address delay in Rs 974 crore national programme roll-out
Rare disease patients urge PM Modi to address delay in Rs 974 crore national programme roll-out

According to the open letter, the delay in rolling out the proposed ₹ 974 crore national programme on rare diseases…

January 30, 2025 08:25 IST
GST, GST exemption, GST exemption rare disease, Budget 2025, Budget 2025 news, healthcare news, pharma news,
Gene therapy exempted from GST; duty cuts on critical medicines for cancer and rare diseases expected

The therapy is a critical treatment option for various life-threatening disease. Earlier, GST on gene therapy was set at 12…

January 18, 2025 14:21 IST
Twist partners with MedGenome in India to diagnose rare diseases
Twist partners with MedGenome in India to diagnose rare diseases

By definition, each individual disease affects fewer than 200,000 people; however, there are more than 7,000 of these often-debilitating conditions.

September 26, 2024 17:35 IST
Rare diseases, rare diseases in India, Sanofi, Sanofi India, sanofi specialty care, healthcare news, pharma news,
We are moving into newer disease areas; Xenpozyme will be launched in India soon: Anil Raina, GM, Sanofi Specialty Care, India

The French drugmakers have launched groundbreaking medicines for Gaucher disease, Pompe disease, Fabry disease, mucopolysaccharidosis I (MPS I) and acid…

May 30, 2024 16:07 IST
Hemophilia, Hemophilia A, Hemophilia in India, Hemophilia symptoms, Hemophilia side effects, hemophilia treatment, healthcare news,
‘I lived my whole life fearing I might bleed to death’: The trials and tribulations of living with Hemophilia

On average, a Person with Haemophilia A (PwHA) experiences 30-35 bleeds a year. Each bleed is said to reduce 15…

May 6, 2024 11:55 IST
Pompe Disease in India | How misdiagnosis, expensive treatment options and poor awareness are affecting patients of this rare disease
Pompe Disease in India | How poor awareness, misdiagnosis and expensive treatment options are affecting patients of this rare disease

In India, diagnosing and treating rare diseases presents a multitude of challenges rooted in limited awareness, insufficient diagnostic infrastructure, and…

February 29, 2024 23:48 IST
healthcare
India’s fight against rare diseases needs more focus on awareness and diagnosis: GlobalData

In the vast population of India, rare diseases are often overlooked, and a silent struggle persists surrounding the diagnosis and…

December 29, 2023 11:37 IST
Rare medical cases, brain tumour, cysts, sack of marbles, healthcare news,
Doctors discover marble-like cysts in Bengaluru woman’s head; here’s what happened next

According to the doctors, mature cystic teratomas are commonly found in the gonadal tissues and in the head and neck…

August 2, 2023 14:56 IST
Crowdfunding, medical crowdfunding, rare diseases, healthcare news,
Medical crowdfunding has been instrumental in financing various treatments: Piyush Jain Co-founder, Impact Guru

India faces a significant healthcare financing challenge, with a substantial annual gap of $72 billion due to exorbitant out-of-pocket expenses,…

July 19, 2023 07:00 IST
Rare Diseases, Ministry of Health, Ministry of Finance, Rare Diseases Treatment, Custom Duty, Healthcare news,
Govt gives full exemption to all imported drugs for rare diseases treatment; Industry leaders welcome move

According to the government, this exemption will result in substantial cost savings and provide much-needed relief to the patients.

March 30, 2023 11:54 IST
Rare Disease Day 2023: 'Need to increase access to orphan drugs in India'
Rare Disease Day 2023: ‘Need to increase access to orphan drugs in India’

World Rare Disease Day,28 Feb 2023: Some of the rare diseases prevalent in India include Gaucher’s disease, Pompe disease, Fabry…

February 28, 2023 20:30 IST
AstraZeneca, AstraZeneca pharma, breast cancer, healthcare news, pharma news,
AstraZeneca expands its portfolio by bringing rare disease therapy for patients in India

In a press statement, the company also announced that this rare disease day, AstraZeneca is also joining hands with the…

February 28, 2023 16:16 IST
healthcare revolution, health news, pharma news,
Rare Disease Day 2023: Here are some lesser known illnesses prevalent in India

World Rare Disease Day 2023: According to health experts, only 5 percent of rare diseases worldwide are treatable.

February 28, 2023 09:08 IST
Rare Disease Day 2023,World Rare Disease Day,Rare Disease Day 2023 Theme,Rare Disease Day 28 Feb 2023,Rare Disease Day importance, Rare Disease Day
Living with Spinal Muscular Atrophy: Navigating the emotional pathway of the condition

One in every 7,744 live births, or roughly 3,200 Indian infants each year, are found to have SMA in India.

February 28, 2023 09:00 IST
Pharmaceuticals, paracetamol, indian pharmaceutical sector, health news, pharma news,
Small molecule approvals for rare diseases in China reach all-time highs this year: GlobalData

In 2020 China established the National Rare Diseases Registry System (NRDRS), which aims to unify rare disease registries into one…

December 16, 2022 12:10 IST
Rare Disease Day 2023: 'Need to increase access to orphan drugs in India'
Takeda biopharmaceuticals launches new injectable drug for rare genetic disorder in India

Hereditary Angioedema (HAE) is a rare genetic condition that causes swelling in different parts of the body like limbs, face,…

December 14, 2022 11:01 IST
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Rise of rogue AI
Rise of rogue AI
Technology1 hr ago

Anthropic and OpenAI have revealed instances of their AI models and agents breaching security measures, raising concerns about the boundaries and safety of highly autonomous AI systems. This has prompted efforts to improve AI security and calls for stricter regulations and safeguards as AI agents now make up the majority of internet traffic.

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