1. Modi government, Coal India to help in treatment of kids suffering from thalassaemia

Modi government, Coal India to help in treatment of kids suffering from thalassaemia

The Union Health Ministry has initiated a project to provide treatment to 200 children suffering from thalassaemia in the current financial year with Coal India funding it.

By: | New Delhi | Published: April 17, 2017 5:35 PM
The four institutions which have identified are Tata Medical Centre in Kolkata, CMC Vellore, Rajiv Gandhi Cancer Institute & Research Centre and AIIMS in New Delhi. (Reuters)

The Union Health Ministry has initiated a project to provide treatment to 200 children suffering from thalassaemia in the current financial year with Coal India funding it. For this purpose, the government has identified four hospitals across the country where bone marrow transplant along with post-surgery treatment will be carried out. The cost of the total procedure is Rs 10 lakh and it will be borne by Coal India, a health ministry official said. The four institutions which have identified are Tata Medical Centre in Kolkata, CMC Vellore, Rajiv Gandhi Cancer Institute & Research Centre and AIIMS in New Delhi.

The project will benefit underprivileged thalassaemia patients who have a matched sibling donor and are therefore eligible for bone marrow transplantation but do not have financial resources for the same. “Only patients whose monthly family income is below Rs 20,000 will be eligible for this assistance,” the official said. “Initially, the project will be initiated at four centres and gradually it may be extended to six more centres so that the waiting time for patients is reduced. Each centre should have performed at least five bone marrow transplants in a year for thalassaemia patients,” the official said.

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An estimated 10,000 to 12,000 children are born with thalassaemia every year in the country. “The only curative treatment for these children is bone marrow transplant which is quite an expensive and costs around 22-25 lakhs in private facilities,” a senior doctor at AIIMS said. Coal India, under its corporate social responsibility (CSR) initiative, has agreed to provide financial support of Rs 10 lakh for each children undergoing the treatment, the official said.

According to the official, the health ministry held meetings with institutions offering this treatment to reduce the price for bone marrow transplant and finally the four facilities were selected. In the first phase, treatment of 200 children will be funded under this initiative.

  1. T
    Tapas jana
    Sep 19, 2017 at 3:35 pm
    Sir, Prayer for Financial Support for Bone Marrow Transplantation OH LORD! I want to live not to leave. I am giving Bone Tri Jana Marrow to my brother. Your prayer and financial support is the crying need to save the life of my little brother! Tiyasa Jana Respected Madam/ Sir, With due respect I am Tapas Jana, working in an NGO beseech to all kind hearted noble persons for compassionate perusal and sympathetic consideration regarding my son Tri Jana, 7 years old, who is a Beta Thalasemia Mejor patient, suffering from the age of four months. After thorough checkup from the beginning All India Ins ute of Medical Science (AIIMS), New Delhi has already decided for operation possibly in the month of November / December, 2017. Estimated cost for this operation is about 19 lacs. Out of which 10 lacs has already been sanctioned through Rashtriya Arogya Nidhi (RAN). Rest amount of 9 lacs is badly needed .
    Reply
    1. V
      vinod solanki
      May 7, 2017 at 11:03 am
      my baby was thalassemiea paisent she is 4 yr old we planed for bmt
      Reply
      1. M
        MADHAV
        Apr 18, 2017 at 2:48 pm
        THERE ARE MORE DISEASES IN THE LIST LIKE STEROID RESISTANT ULCERATIVE COLITIS ,WHICH STILL REMAINS INCURABLE TILL DATE AND HIGH COST OF MAINTENANCE DOSES OF THE DISEASE DRAINS OUT THE ORDINARY INDIANS ECONOMICALLY.THE SADDEST PART OF THE STORY IS THAT EVEN HEALTH INSURANCE AGENCIES DO NOT COVER THE PATIENTS SUFFERING FROM THE DISEASE UNDER HEALTH INSURANCE.GOVT. SHOULD MUST TAKE INITIATIVE TO DO SOMETHING FOR THESE PATIENTS AS WELL.
        Reply
        1. A
          Abhay kishore sandwar
          Apr 17, 2017 at 10:21 pm
          Intiatives taken by the COAL India LTD deserves appreciation under CSR . COAL India Ltd should take initiatives in other deadly diseases field where cost of treatment is too much and beyond reach. Well done
          Reply

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